M.E. usually starts through a virus that you just don't recover from, this was how mine started and how it is for most people with M.E. There's no medical results that show what M.E. is or how you got it, you only find out when you've been for every test under the sun and it's the only option left (this sucks). I had a virus in July 2009 that put me in hospital, i then started to feel a bit better over the summer, even if it was only to a certain extent. When i started my last year of school in the September i started to feel really rough again (just after my 16th birthday). Now, i was tested for everything and i really mean everything (seriously, i gave enough blood to feed all the vampires from Twylight!) but nothing showed up on the results. Eventually, i was diagnosed with M.E. and yeah, it was nice to know what was wrong with me but hearing that there was nothing they could do to make me feel better was awful, i left most of my appointments crying. But, i've now had M.E. for 5 years and i've learned by myself how to manage my symptoms, it just takes a hell of a lot of trial and error. So now that i'm at a very low place with my M.E. and bed bound with Michael as my carer (and ever so lovely boyfriend) and needed something to keep me sane, we decided it was time to start a blog and maybe help some other people with M.E. have a little brightness in their day. This post is on my daily life with severe M.E., it's hard hitting but shows the truth of this terrible illness. Below are some of the symptoms of M.E. and places you can get support.
- Aching muscles
- Stomach cramps
- Poor sight
- Brain fog
- Light sensitivity
- Sore throat
- Sound sensitivity
- Lack of appetite
- Mood swings
- Trouble maintaining temperature
- Not niceness ;)
So yeah, M.E. is a pain in the arse. But if any of you think M.E. is just 'lazy mans flu' then i suggest you get off this blog because it won't end well. If you still don't understand it very well or you have M.E. and are like me (no specialist help) then here are some websites to find out more...
M.E. Bloggers - This link will take you to a post full of all my favourite M.E. blogs to read and how to find even more. This is probably the best place to go if you want to find out much more about the details of a life with M.E.
AYME - a charity for sufferers that are aged under 25, this is a great place for their message boards where you can talk to other young people with M.E. about anything.
Action for M.E - another great charity who work very hard to support everyone in the UK with M.E and get them the help they need.
The M.E Association - a membership for people with M.E.
M.E Research UK - a charity trying to fund more research into M.E to understand and help people with the illness to their best ability.
Invest in ME - another charity who are independently trying to fund bio-medical research and delve into all the different components of M.E.
Severe M.E - a place to buy the book written by the wonderful Emily Collingridge who worked 'til her very end to help and support other severely affected sufferers. If you have M.E buy the book!
If you want to know more or ask me any questions then email: email@example.com
We'd love to hear from you and i've already made a great friend through her doing this.